Trying to find the right fit – getting clothes to look right with an ostomy and IBD – part 1

After a few nightmarish days of running around the Trafford Centre in search of a pencil skirt which fits a thin person with an ostomy bag and finding absolutely zilch, which lead to a full-scale breakdown, tears and wailing of ‘I’m disgusting, just look at me’, I thought I would do a series of blogs on trying to find clothes that fit and make you feel a million dollars when you have IBD and/or an ostomy bag. Let’s hope it helps to stop you spiralling into a shopping induced whirlpool of self-pity.

So here we go, over the next three days I am going to blog about my fashion dilemmas, what not to wear when your bag is on overdrive, and how to make yourself feel instantly happier, braver and more confident even when you’re about to disappear into a world of pain and misery…oh, and the biggest tip of all – avoiding white pants.

Over the years I have really struggled to find clothes that fit and look right. Years of

Work - some outfits have lasted the op - this is one

Work – some outfits have lasted the op – this is one

weight fluctuation due to Crohn’s/Colitis flare-ups and lengthy periods of hospitalisation have caused chaos in the wardrobe department, meaning I seemed to have developed two wardrobes: one for when I’m sick and the other for when I’m well – I’m sure you know which one I wear most often.

My wardrobe is divided. One side appears to be clothes that when I’m ill I wouldn’t be seen dead in for fear of either looking like a vampirish skeleton or, on the exact opposite side of the scale, looking like a beached whale. I have loose fitting clothes for the days I look like a snake that’s swallowed a hippo – you know skinny but with a bloated belly the size of a small planet – and I have hundreds of too big jumpers which can be layered up to give the pretence that I’ve not lost that disastrous amount of weight again – a trick I picked up years ago in an attempt to stop my spiralling illness upsetting my friends and relatives. I’m 99% sure this doesn’t work anymore, but I have to admit that I find comfort in wearing clothes which bulk me out when I’m looking painfully thin – oh, and it does help to keep me warm.

As a self-conscious woman suffering from IBD wrecks total havoc on my daily getting ready ritual. Even something as simple as getting dressed for work can result in a room strewn with clothes and a total meltdown. Some days even silk hurts my swollen belly. Kicker lines dig painfully into my hips, bra clasps rub sores into my bony spine, and dresses pull uncomfortably as my stomach spasms underneath the material. I’ve had days where nothing fits right, where everything causes discomfort, or in some weird magic trick the clothes that fitted perfectly just days before are transformed into giant’s clothes. Some days my room ends up looking like a Very catalogue has exploded all over it, with clothes strewn everywhere. On days like that I’ve considered going to work in my PJs, or even naked – I’m sure that would raise a few eyebrows in court.

Summer dress - teamed with tights = winter winner

Summer dress – teamed with tights = winter winner

In previous posts I’ve talked about how I expected to feel unattractive following my surgery; how I expected to not want to wear anything but trackies for the rest of my life. When I first took off my baggy joggers and pjs after months of recovery I vowed never to go back to them again. Ok, so I haven’t stuck to that. As I write this I have to admit I’m wearing my team GB joggers teamed with a far too big jumper. Yes, I look dreadful. Yes, i wouldn’t go out like this (well I would just to get some sweets or a snack) but I’m comfortable and that’s what joggers are made for, pigging out days and poorly days. I don’t feel guilty about wearing them occasionally but since my surgery I have realised the value of dressing to make yourself feel good, look good and to increase confidence. I’ve realised that when I’m wearing my trackies I don’t feel womanly or attractive, that even when I’m feeling ill, bloated or tired, putting on a nice dress, doing my makeup and hair and pulling on a pair of heels instantly makes me feel better, even if inside I’m crying.

Post surgery has presented me with a whole new world of problems in the fashion department. The best thing I ever did was to bite the bullet and through out all my ‘I will never wear you again’ outfits which would have been a daily reminder in my wardrobe of the figure I once had prior to the arrival of Winnie (the stoma) and my un-scarred stomach. I thought that I would miss those clothes; the figure hugging body con dresses I used to dance the night away in, the bikinis and extremely uncomfortable jeans – I don’t miss them one bit.

At first I stubbornly tried to dress the same way I used to. It worked for a while as I’d lost so much weight the added width of my ostomy bag on my waist line didn’t make a dint on my waistband, but once my muscles and weight started to return I learnt the hard way that the well-worn skinny jeans were no longer an option now that I had my new best friend. Those were my favourite jeans. They were cheap but comfortable and fitted me like a glove, so I carried on stubbornly wearing them, despite the fact they were crushing Winnie to death. I finally threw them away after a few very unfortunate incidents on long car journeys, where, the lesson was learned that a tight waist band resting on an overactive ostomy = explosion. Those jeans were not made for sitting down.

More tomorrow…in the meantime if you have any fashion tips please get in touch and share them….you could help someone (me included) feel more confident.

 

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3 thoughts on “Trying to find the right fit – getting clothes to look right with an ostomy and IBD – part 1

  1. Great post! I am struggling with this lately too! As I have now put on more weight, I am struggling to find things in my current wardrobe that doesn’t make Steffi stick out like a sore thumb!! Most of my clothes are ostomy friendly (my style before was a lot of floaty dresses and baby doll tops etc) but they have all been shrinking! Haha. I used to wear those slimming singlet things that would help flatten it out so you wouldn’t see the lines under clothes but now it’s like 34 degrees here in Brisbane most days, I just can’t handle the heat from it. No one wants a sweaty ostomy bag stuck to them! Looking forward to more of these posts xx

    • I’m not having problems with the heat at the moment 😦 it’s freezing here. But I know what you mean, with the weight coming back I’m really starting to have trouble, and skimpy summer wear was even a problem straight after surgery. All my body con dresses have gone to charity – so someone is out there wearing my pre-op clothes – I’m changing my style, but I have to say I’m not bothered about people seeing Winnie so much but the pain I get if I wear the clothes I know i look decent in! its a risk wearing tight things as if she goes into overdrive she could burst and go everywhere. I don’t like the idea of her contents spreading under a tight white top or spilling over jeans in a dark patch 😦
      If you have any ideas please share – I will too.

  2. I will be watching your next couple of posts with interest. I am in a “stomach is too big” phase and am also trying to figure out my wardrobe. Something I’ve used in the past which may help you is wearing long flowing over tops, over jeans, (no tight waistband) or tights or bootleg styled pants made of t-shirt material. They are comfortable, you can wear just about anything with them, and the tops cover a multitude of sins. Good luck!

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