Firstly I want to apologise for not blogging for so long. Since we last spoke life has been hectic. I have abandoned my normal minimum two blogs a week rule in order to keep up with an escalating workload; to restart my French learning; to get fit; crack on with my novel, and in favour of white wine in the summer sunshine (you have to grab it while it’s here)!
But, as of today I’m back! I’ve missed telling you all about my adventures and sharing my experiences with you all. I’ve also missed hearing your stories and getting tips on how you all cope with Crohn’s or Ulcerative Colitis. Love me or hate me you can be reassured I’m back for good – you can’t get rid of me so easily.
Anyway, today I want to talk about dealing with one of the biggest problems I have living life without a colon. No, it’s not the fact that sprouts, baked beans and spinach magically reform and come out whole no matter how much I grind them to a pulp; the sudden expansions of my bag when it fills with gas; the unexpected (and very loud) farts she likes to make in the middle of meetings; or the fact my poo turns purple when I eat beetroot.
It’s dehydration which causes me the most problems. And it’s not just irritating to have increased watery output, but it can also be dangerous.
Yesterday as I crammed on a boiling tube along with hundreds of other irate commuters to get home from a conference in London, I felt the awful effects of severe dehydration kicking in. The heart was ridiculous and I could feel myself flagging as I stared into a sweaty armpit immediately in front of my face. Stupidly I hadn’t thought to carry a bottle of water and I could feel my energy zapping away with every airless second that passed.
Luckily I made the short ride to the train station before my ostomy output went through the roof. On my journey home (over three hours in the end) I must have emptied about three litres of liquid out of my bag, which would rush out so quick I would be racing backwards and forwards to the loo, bobbing up and down beside the engaged cubicle, and hoping to god the other person inside didn’t have IBD as well.
I felt dreadful afterwards. I had all the signs of dehydration. But as per usual it had crept up upon me and I hadn’t realised before it was too late. As I sit in the sunshine writing this blog I’ve still got a headache from it.
Ok, so when it’s this hot (30 degrees, if your not in the UK, is hot for here, believe me) everyone, whether you have IBD, an ostomy, a bald patch, a clicky hip, anyone is greater danger of dehydration. But if you have an ostomy you have to be far more vigilant – as we are already prone to it anyway.
Dehydration can occur after ileostomy surgery as the purpose of the large intestine is to absorb water from the indigestible waste and then expel the waste material from the body through bowel movements.
During ileostomy surgery, a part or all of the large intestines is removed, which prevents the body from absorbing water from the waste before it is excreted from the body. Dehydration can occur when the person does not drink enough fluids to replace the fluids lost as the waste moves through the stoma and into the attached bag.” (Stoma Wise)
Apparently when you have a stoma you should drink one litre above the average recommended consumption of liquid for a person without a bag. And that isn’t when it’s swelteringly hot!
I put my hands up to not looking after myself and being far too busy rushing around chasing stories, working and enjoying myself to remember to drink enough water. I am terrible with it. And having re-started my running and fitness regime, running in the soaring temperatures, I have put myself into the dangerous category without even realising it.
Not only that but according to Stoma Wise:
Dehydration can also upset your electrolyte balance (especially potassium and sodium) When the colon (large intestine) is removed, there is a greater risk for electrolyte imbalance, Diarrhoea, excessive perspiration and vomiting can also increase this risk.” (stoma Wise)
Here are some tips I thought I would share with you. If you have any please let me know.
NOTICE THE SIGNS
Dehydration can include: Increased thirst, dry mouth, dry skin, decreased urine output, fatigue, shortness of breath, stomach cramps.
Sodium Loss can include: Loss of appetite, drowsiness and leg cramping may
Potassium Loss can include: Fatigue, muscle weakness, shortness of breath, decreased sensation in arms and legs, and a gassy bloated feeling
STAY HYDRATED – even a lolly will help (for me anyway)
I’ve found that buying a filtered sports bottle has really helped. I currently have the Brita filter bottle which I carry around. I put it in the fridge overnight so that the water is cold all day at work. Eating very soft fruit like nectarines has also helped give me fluid, however be wary some fruit can cause problems for ostomies as the skin doesn’t digest. Popsicles are also a good call.
AVOID EXCESSIVE ALCOHOL
Sun + alcohol = carnage (enough said).
The only thing I have salt on as a rule is chips meaning I am very salt deficient. I have started adding a small amount to my meals (when it still tastes ok) to try and combat my ‘salt leaching’ situation.
TRY NOT TO GET CARRIED AWAY
For all sorts of reasons this is common sense for everyone, but it is easy to get caught up with the ‘beer garden’, drinks after work, and lapping up the sun mentality. I am guilty of it as I write this. But try to be sensible. Dehydration is a creeping feeling – you won’t know it has happened until you start feeling ill.
Do you have any tips? Please share them….